Wednesday, June 7, 2017

Can I have FAITH and NOT be healed? Does God still LOVE me?

I'm not one of those people who thinks you have to say *just* the right thing to me. If your words tumble out in an awkward mess about my suffering or diseases, I'm just happy you thought of me. Some people have said some crazy things to me regarding my Anesthesia Dolorosa, but I know their intentions are wonderful. Plus, I forget things like you wouldn't believe and words squirt out of my mouth faster than I can suck them back in. I fumble, jumble, grumble and bumble. It takes a lot to offend me and heck, I might even forget it entirely. So never worry about saying or asking the right/wrong thing. I'm an open book these days with thick skin if you don't count the right side of my face and head. haha

But one woman's words struck me to the core of my soul and rattled me weak and broken. She had the BEST intentions in the world. (I have NO bad feelings towards her, btw--> not now and not then).

She and another gal were visiting me even though she knew I was struggling talking. They brought us yummy food and talked for a bit. The woman's first language was not English, so I wasn't sure if she quite understood everything in my situation. She did, to an extent, because she too had Trigeminal Neuralgia. Her story was much shorter than mine and was like most wherein she visited with a neurologist once and was put on 1-2 anti-seizure medications and has had no problems since. She pulled out her two prescription bottles. I had to tell her 3 times that I had tried one of them but my body rejected it and the other one I was currently on (at a much higher dose and several others). I explained that I'm glad her neurologist was good, but I already had TWO neurologists AND a neurosurgeon. (Many people don't understand that what I have is 100000000000000000000000000 times worse than TN-the suicide disease). I love connecting with others who have one of my many diseases-there's a sisterhood in finding someone who has dealt with some of the same pains and struggles. I cried a little but told her how grateful I was that she found relief and was one of those who doesn't have to suffer anymore. She recommended I pray.

The part that struck my heart like a machete, Thor's hammer, the black plague, and a harpoon was when she said, "I asked my husband WHY did I get this miracle? Why was it all taken away? I thought I was going to die and now I don't." Her husband said, "You got a miracle because God loves you."

"...because God LOVES YOU."

I couldn't hold back my tears, but hugged, said good-bye, and sucked in my breath in hopes of keeping the floodgates in until they reached their car. I felt like my breath had been taken away and replaced with rancid poison. (Can poison become rancid?)

I crumbled to the floor and sobbed, bawled, screamed, and howled all at once. I banged my fists against my tingly, weak legs and didn't care how many knives, electric bolts, bugs, punches, scorpion stings, burning, or pounding happened in my face or head. I already wanted to die every minute of every day. Why in the world would it be so in my face (pun intended) that I wasn't healed?

There are very few times in my life that I have grieved so harshly and loudly. Usually my jerk reaction is to numb myself with chocolate, a movie, or sleep until I could regain my composure/strength. This time, though, I went to the scriptures. I read over and over about Christ begging God if there was any other way. He asked 3 times.

Some people have told me that I don't have enough faith or I'm not thinking positively enough. Now, I'm not equating my struggle to Christ's because I know it PALES in comparison. But, Christ fell on his face and pled with his Father in Heaven for relief. And He did not get it. Instead he suffered even MORE. I looked up the apostle Paul (Saul) and his "thorn" in his flesh that would not depart despite his pleas 3 times. He continued on ward despite being imprisoned 2 times, ship wrecked 3 times, stoned, 5 times whipped with 39 stripes, 3 times beaten by rods, faced robbers & conniving people, suffered hunger, thirst, homelessness, sleeplessness, cold, and eventually martyred.

Was God's response cruel? Did He not love Paul or Christ or anyone else who has begged and pleaded and NOT been healed? Did God abandon those who suffered endlessly and only visit those he loved (as evidenced by their 'thorns' or diseases being taken away)? Should any of them have prayed MORE? (**Three is symbolic Biblically as WHOLE or COMPLETE. Often times it is used as a figurative number instead of a literal number. It may literally have been 3 times, but it may have been many more than that. 3 decades? 3 stages of rising and falling hope? Hope, crushed hope, rising hope, shattered hope, baby-step hope, asteroid fallen hope? 3 missions? 3 parts of the night? Either way, I don't know for sure.**)

God said, "My GRACE is sufficient for thee" (I feel like a failure mom and wife at times. But if I keep God as my companion, His grace will make up the difference. As all 3 of us raise my daughter (husband, me, and God), she will become her best self. I don't have to do it all on my own.)

He continued, "My strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am WEAK, then am I STRONG."

I never understood this like I did that day on my knees. First I feel in utter and complete sorrow crushed by the weight of my burdens. Next I prayed, read, prayed, and read until I understood that God DOES love me EVEN when he does NOT heal me.

I am the WEAKEST I have ever been in my life. I was the weakest physically, emotionally, spiritually, and mentally. And yet these incessant pains are teaching me a lot about myself, my strength, and God's power. I'm learning that I HAVE to take time for myself and heal instead of just deal. I cannot run faster than I'm able. (Ahem, I haven't been able to run for 19 years or half of my life, but you get the sentiment). I'm talking to God even more than I ever have before. I've had a very close relationship with God and Christ from a VERY young age. But, this depth of pain has also brought about a depth of closeness and connection that I haven't had before. While I do NOT rejoice in this AT ALL-bless your heart Paul-I do rejoice in the connections I've made with friends, family, and my Father in Heaven.

I still have pains each day that are unbearable. I still have nightmares or PTSD triggers from waking up in my little brain surgery. I still can't do many things without pain. I still mourn the days when I could talk, laugh, and smile whenever and however much I wanted to. Whether I was in a bed, wheelchair, country across the world from my home, or mountain top--->I miss that. Truthfully I may never (in this life) be able to talk, eat, sing, laugh, smile, brush my teeth, shower, etc without paying for it and being forced to stop. But, for better or for worse my pains are reminding me to turn PAIN into POWER and to really look to who has ALL POWER. And that is becoming a strength in my weakness.

12 comments:

  1. Oh this breaks my heart. I am glad you went to the scriptures and can turn to the lord. We do have to have faith sometimes to be healed but sometimes it is not his will. I really thought Abby was going to be healed way back when all she had was her kidney reflux. I was so devestated and upset that he would not heal a little child. I often think that there was no way for her to understand that me holding her down and going through procedures that were scary and painful would ever be a good thing or that I did it out of love for the bigger picture. Her and Quinn didn't want me when it was at their worst. It gave me a glimpse into heavenly fathers perspective and that in this life, most of the time our pain and sorrow doesn't make sense. I do know that my kids aren't healed because of a lack of love or faith and I share that so you know how I feel about you as well. For God so loved the world, he Gave his only begotten son. Maybe I think too much into things I shouldn't or try and reason why things happen and I am way off. What if this was the only way for your daughter to make it back and be yours forever. Would you do it willingly for her? We just won't know the reasons why we suffer but all I have is hope that you and all of us go through this or he allows it for us to make it back and have that joy forever. I love you so much and I look forward to the resurrection when you will be whole and free from your pain and sorrow. I love you forever.

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    1. Thank you so much Nat!! I appreciate your perspective for sure!!! It is especially poignant that the kids didn't want you for a time because of how you had to hold them down. It was hard on them, but hard on you too!! Yes, I know my daughter learns a great deal by my diseases and disabilities. I wish she could have a "normal" mom, but then again we all have our weaknesses that can be strengths to our children. Love you and thank you for reading and commenting. You are the best Natali!!

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  3. Inspiring! I am a friend of Karla's who lost my son back in December and Karla has shared your blog with me a few times for me to see your words of encouragement! I do not know you or the pain you endure, but I do know you have the strength to call upon the Lord. Just know you have inspired me to be a better person and mother through your words.

    My take from this post....."While I do NOT rejoice in this AT ALL.....I do rejoice in the connections I've made with...my Father in Heaven."

    I grew up in church and have believed ever since however, my faith lagged for a few years and had re-ignited after marrying my current husband. The Lord placed him and his son in my life for a reason but it's definitely hard to determine why he would take our son so soon!

    I would not be where I am today without my faith supporting my grief. THANK YOU for your inspirational posts and know that I pray for you regularly! God DOES LOVE YOU!

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    1. Wow. I feared up with your beautiful message. I had no idea. (By the way, isn't Karla amazing?!?) I am so tremendously sorry for the loss of your son. I can't imagine the depth of pain you have suffered. I will definitely pray for you too. Thank you for sharing your pain, the power you have found, and the support we have available through calling upon the Lord as you mentioned. Bless you for moving forward despite the heavy burden you are carrying! Thank you for sharing and connecting with me. It means a whole lot!!!

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    2. TEARED up, not feared up. Haha. Dang autocorrect and my inability to figure out how to edit what I posted. :) Thank you Jessica

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  4. Karla June 8, 2017 at 9:16 PM {Reposted}
    Oh my. No words. You are amazingly strong. My burdens are meaningless in comparison. But I find myself constantly reciting "I can do all things through Christ who strengths me". That scripture along with singing I need thee oh I need thee, every hour I need thee, oh bless me now my saviour I come to thee" always give me comfort. I pray that you continue to grown and have strength to continue living. God would not have given you Mike nor {your daughter} if you three weren't meant to be together. Love you. You are an inspiration

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    1. @Karla- Thank you so very much. You are one of the most Christ-like people I've ever had the pleasure of knowing! Thank you for your beautiful words and service you render to my family often. I have a picture in my house with the very same quote you mentioned! And I love the song you think/sing.

      I'm so blessed to have my little family and wonderful people like you!!!

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  5. Ive always struggled with the words that "because of our prayers __________" I feel we need to get away from putting a reason to why things are happening and focus more on just loving others and trusting Heavenly Father. I realize that leaves a lot of unknowns out there and people aren't very comfortable with that but in reality people are healed, people suffer, miracles happen miracles don't happen, all because of God's love. I have had countless times when I have thought of you and prayed for you and then read that you had a relapse or something awful happened and I just have to trust that when I pray Heavenly Father is aware and he sends a few more angels to hold you up. I have always admired your attitude and your ability to be real. Keep being you Kali, you are greatly loved by God and you share that love He has for everyone of his children daily. Big hug!

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  7. Reposted:
    Karla June 9, 2017 at 4:21 PM
    I share because you are so wonderful at putting your feelings and pain into words. That is a great talent. And I share with hope that my friend will find comfort in knowing she is not alone and I hope she finds ways to cope as you have. I am far from Christ like. Lol. My friend Jessica met {your girl} when we picked strawberries. She is such a doll! We love hanging out.

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    1. Well, I still say you are one of the most Christ-like people I've ever met!!!! And my little one LOVES hanging out with you are your two cuties. Thanks Karla. You are amazing and such a wonderful blessing to us.

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